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Saturday, July 23, 2011

Changes

This journey has brought so many changes to our family- On June 29th our family was forever blessed by the addition of Joshua. On July 18th we were saddened to lose another member of our family- my sister.

I have seen Joshua change as well. No not huge dramatic changes but subtle ones. He used to cry when he would hear the spoon scrape against the bowl or jar. I think for him it always signaled food time was over and he was still hungry. He is lessening his cry and starting to realize that he will be fed until he is full. He use to whimper when we would change his diaper. We would lift his legs and he would squint his eyes and whimper. I still remember the days in the orphanage while we sat waiting for them to change his diaper or clothes and hear them banging the back of his head on the table while they were hurrying to get the job done. We take extra care to hold his head and gently place him on a soft area and we are taking the time to slowly move his legs and butt up to put a new diaper on. He now will smile as we change him. He always is watching to see if we move or leave the room. He actively is seeking us out where before he just went about his own business. He responds to his name and will smile as soon as we say it. He is getting bored with his 3 toys we have for him and we have had to resort to pots and pans with plastic spoons. I fear it won't be long before that is not enough. He wants to move.. wants to be active however we are limited with things. We do not have a walker for him to sit and play with. We are in one room and for us the days drag on. I know he is gaining some weight although it is just a subtle gain right now.. and when we got him from the orphanage he was dehydrated and that is no longer the case. Last week the first night we got him he had one wet diaper in like 10 hours. Today he has at least 7. We are pushing the fluids.

I feel out of my league here. Seriously in the 22 years I have been a mom, I have seen sick children. I mean sick kids with croup, pneumonia and pretty much it all. Last week I knew Joshua was not feeling well. I got him and he was dehydrated and running a fever. He was not struggling to breath and my first thought he has an infection of some sort and will need to be seen for an antibiotic by our pediatrician. There has never been an even gut feeling of hospitalization. Today as I look at the little boy in front me, I don't even feel a need for him to see a doctor. It seems our efforts are working. He has been on an antibiotic now day 8, he has been fever free for 7 days, his cough if he coughs is loose and his nose is no longer running like it was. We continue saline drops and now (excuse my details) his snot is clear and lose rather than green and sticky. And yet as a mother, I am googling and calling on anyone I know in the medical field for advice on how to clear his lungs quickly for a positive outcome on the x ray. And although I see so much positive in his health, I am left discouraged. The one important change I need might be too soon to come on Monday. That marks 10 days from antibiotic. It is the earliest we are allowed an x ray by the clinic. It also might be too soon for the lung to show improvement since all my research says it could take weeks for that.

I have to admit- I feel like a big baby here. We do have flights if by a miracle he is allowed to travel for Tuesday. They did this because I have to return home for my sisters memorial. It was suggested to reserve all of us tickets in case so we could travel at once. We were told that if we had to cancel Dave and Joshua's we could do it on Monday and only incur a $50 loss. Today has been difficult. The days go by so slow. We have no TV to occupy our time and we have to take turns to get out for small walks. We eat either chicken or eggs daily. We spend much of our time taking Joshua into a steam shower or clapping or thumping his back. Joshua is limited on clothing and has one t shirt until the rest air dries. The thought of leaving this country without my husband and my son is horrible. The thought of attending my sisters memorial and speaking at it without them is not pleasant. I get travel sickness on planes and quite frankly flying scares me and Dave is my usual rock. He may not be there to be that rock.

Right now it seems as if it will take a miracle to travel. But I know that if any miracle can happen it will happen from God. I ask you continue to pray for us and ask that this miracle occurs and we all board a plane on Tuesday. We are ready to close this chapter and begin a new one.

Another change for Joshua- He loves his bath now



19 comments:

  1. He looks like he's enjoying bath time a little more!

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  2. Great pictures! Thanks for sharing!! I'm sure it is hard to get your hopes up under these tough circumstances. I am wondering, if he did have TB, which it seems like he doesn't as you've said, can you still adopt him? I'm sorry if I missed you explaining that.

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  3. Continuing to lift you all up in prayer.

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  4. praying there is enough change that you will be able to go home together!!!! hugs!
    Nancy

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  5. Miracles happen everyday. I see one in these pictures, and you and Dave are part of it! We understand the hardness of illness and the "stuff" life throws...please know you are heavy on our hearts today and we are lifting you in prayer. YOUR MIRACLE IS COMING!
    Joshua is awesome! Hang in there and just remember to try and enjoy the struggles, it is the way God comforts us as we transform from glory to Glory!

    Take Care...we are praying!

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  6. Ilisa- if he did or does have TB then it would require a much longer delay.. months. We have been assured by even the clinic that truly they do not believe he does. Can we adopt him is a mute issue since he is already adopted by us :) He is 100% our son- legally and all that jazz. No matter what we will take care of it like we would do for any of our children however, we would rather be in the US dealing with it!

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  7. Where are you all in the country? Are their other families coming in with RR that could bring you a few new toys, snacks, clothes, DVDs :) etc... I was just wondering if the folks at RR could coordinate this for you?

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  8. We are in Kiev. I am not sure what other families are here right now. Or who for sure is coming. There were a couple of families here at one time however we didn't want to risk getting Joshua sicker or risk getting any other little ones sick before flying out.

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  9. I'm Sharon in New Mexico, please excuse me for using the anonymous option. I seem to recall reading that cystic fybrosis children sometimes are held upside down to cough up phlegm. Not to traumatize the poor little guy, but something to think about anyway. Godspeed to all of you.

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  10. I AM PRAYING FOR A MIRACLE - CLEAR LUNGS - CLEAR X-RAY! PRAYING!! YOU ARE NOT FORGOTTEN!

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  11. I am praying for you and your family!!

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  12. Praying for clear x-rays on Monday and clear skies on Tuesday for everyone to travel home! We'll continue praying for miracles that no one can deny!

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  13. Hi Lisa,

    Do you know what Chest PT is--it is often used as a treatment for cystic fibrosis (previous commenter made me think of this). Every 4 hours, cups your hands (like suction cups) and hit his back. I know that it sounds horrible but is actually feels good if done right. Practice on each other first before Joshua. It should not feel like a slap at all--hands are cupped. Focus on each lobe of the lungs for a few minutes. This will loosen up goop in the lungs. Try to get Joshua to cough after that and suction.

    (from an old PICU nurse and pediatric nurse practitioner)

    Hang in there. Lots of love and prayers-Anna

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  14. Continuing to pray for your family. Praying for the xrays to be clear so you can all fly home together once and for all.

    :)

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  15. Lots of prayers happening Lisa! God is a God of miracles!! Hang in there. Mel

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  16. Love looking at his cute pictures. Praying you get your miracle and all get to come home real soon.

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  17. Oh my, he is SO sweet! Many prayers for a miracle coming from our way!

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  18. He is so sweet. He looks very happy. Good job mom!! I will continue to pray that your family can return home together!

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  19. So glad Joshua is feeling better! I pray that God will bless his lungs and that the x-ray will be clear and you can all travel together on Tuesday. "With God all things are Possible!"

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